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Suffering from myopathy, Tristan, 22, has a furious desire to enjoy life [Vidéo]

In the living room of the family home, in Augan (56), Tristan Létoré welcomes us with a broad smile. At his side, Dylan, the carer who takes care of him four days a week, for almost six months already. Immediately, the ice breaks: “Can we be on familiar terms? The Morbihannais just celebrated his 22nd birthday a few days ago, on November 27 precisely.

A normal education

He was diagnosed when he was four years old. Duchenne muscular dystrophy. A genetic disease, which causes a progressive weakening of the muscles of the body. “I fell more than the others at school, but I didn’t realize it, I thought it was normal,” he recalls. I saw a doctor, then a specialist”. He spends all his schooling in establishments in the sector. “I did everything the others did, outings, school trips, everything,” he explains. His entrance to college is done with a wheelchair. He was then ten years old. “I needed it, so I used it, it’s as simple as that”.

In high school, they adapted a classroom on the ground floor, it was the teachers who moved

Tristan passes his patent, like everyone else. Then comes high school. “I had the choice between the local establishment with my friends, but which was absolutely not suitable: there were three floors in the buildings, no elevator… Or, I could go to Questembert (56) . But I didn’t want to”. Direction therefore the high school of Guer (56). “They adapted a classroom on the ground floor, it was the teachers who moved around”. Graduated from an ES baccalaureate in 2018, the young Auganais then headed for a BTS operational commercial management which he spent on a work-study program. “Since September, I have been working on a permanent contract in a taxi company, in Ploërmel (56)”, he specifies.

The passion for motorsports

His weeks revolve around his part-time job, 25 hours a week, and his hobbies. Including the motorcycle. “My parents are both fans and that hooked me up straight away”. In the entrance, a large frame that houses a photo of him alongside the Italian motorcycle champion Valentino Rossi testifies to this overflowing passion. On the fireplace mantle, a drawing represents “The Doctor” and the Létoré family. Tristan laughs: “And again, it’s nothing compared to everything in the room!” He precedes us and leads us into what he calls his “museum”. On all the shelves in the room are helmets, miniature motorcycles, photos… Every year, the family goes to Le Mans to attend the Grand Prix de France. “We went to Portugal in 2021 and to the Netherlands this year,” adds Tristan.

Two years ago, I bought myself a quad. My father-in-law installed a specific backrest in it with a harness system

In addition to following MotoGP, the Morbihannais also practices motor sports. “Two years ago, I bought myself a quad. My father-in-law installed a specific backrest there with a harness system”. Passionate about thrills, Tristan also does paragliding, downhill biking or chair-skiing: “With the Loisirs Assis Évasion association, I was able to ski in an electric wheelchair, there are only two in Europe. . It works on the breath: depending on whether I inhale or exhale, I can go left or right”.

A compass tattoo on the arm

His passions, Tristan shares them with his family. With his mother and his stepfather, but also his big brother and his little sister. “We all see things in the same way and that unites everyone, he slips. Whether it’s with them or my friends, I’m lucky to be in good company”. On his arm, the tattoo of a compass, which the whole family has in common, supports his point. “I have never deprived myself of anything. Everything I wanted to do, I did. We just adapted.”

My temperament is to never give up. My myopathy, I accepted it and I live with it

While waiting for research to progress – a new gene therapy has been tested since 2021 on young patients – the Breton sees a physiotherapist twice a week. “There isn’t really any other particular medical care…” This weekend, he will be in Lorient to bear witness to his fight without fatalism. “My temperament is to never give up. I understand that people may see things differently, but I never got stuck on this phase of “why me and not someone else? “. My myopathy, I accepted it and I live with it. Otherwise, you are not moving forward”. Because Tristan Létoré is 22 years old and has a furious desire to enjoy life.

These Bretons are great!

letelegramme Fr Trans

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